WOMEN
ADVANCED BREAST CANCER
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AMERICAN CANCER SOCIETY
website: English and twelve additional languages
https://www.facebook.com/AmericanCancerSociety
https://twitter.com/americancancer
(800) 227-2345
Helpline/information, English 24/7, Live Spanish help, Monday – Friday 7:00 AM –
7:00 PM, CT, After hours – third party translation.
Third party translation service for other languages.
Live chat available, English and Spanish, Monday – Friday, 7:00 AM – 6:30 PM, CT
The American Cancer Society (ACS) is a nationwide, community-based voluntary health organization dedicated to eliminating cancer as a major health problem. It provides information, education, resources, and support for all types of cancer including alternative approaches, clinical trials, and tips for living with cancer.
Videos on Clinical Trials
Information on what is involved in a trial and how to understand if a trial is right for you. Note: search results do not replace advice from your doctor.
About Clinical Trials
Note: search results do not replace advice from your doctor.
Sex and the Woman with Cancer
Sex and the female body; surgery and sex; chemo and hormone treatment and sex; cancer, sex and the single woman.
Talking to Children
Steps, advice, and resources on how to tell children when a family member has cancer.
Caregiver Information and Support
https://www.cancer.org/treatment/caregivers.html
A video series and downloadable guide for understanding a caregiver’s role; patient nutrition; coping skills; how to deal with money issues; living wills and facing end of life, as well as, how to assist with the everyday needs of their loved one and self-care techniques to improve their own quality of life.
Healthy Eating, Active Living
https://www.cancer.org/healthy/eat-healthy-get-active/healthy-eating-active-living-videos.html
2 to 4-minute videos: Healthy choices can impact your risk; the truth behind cancer myths, how to incorporate healthy behaviors into your busy life.
Services are free
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CANCERCARE
website: English and Spanish
https://www.facebook.com/cancercare
https://twitter.com/cancercare
(800) 813-4673
Helpline, English and Spanish, Monday – Thursday 10:00 AM – 6:00 PM, Friday 10:00 AM – 5 PM, ET – This number is for all services except chemotherapy copay assistance.
(866) 552-6729
Chemotherapy Copay Assistance Line, English and Spanish, Monday – Thursday, 9:00 AM – 7:00 PM, Friday 9:00 AM – 5 PM, ET – this number is for help only with chemotherapy assistance.
(877) 880-TNBC (877-880-8622)
Triple Negative Breast Cancer Helpline, English and Spanish, Monday – Thursday 10:00 AM – 6:00 PM, Friday 10:00 AM – 5 PM, ET
(800) 813-4673 Pet Assistance & Wellness Program (PAW) Hopeline, Monday – Thursday, 10 AM – 6 PM, ET, Friday 10 AM – 5 PM, ET
CancerCare is a national organization providing professional support services with information to help people manage the emotional, practical, and financial challenges of cancer. CancerCare Oncology social workers are licensed professionals who provide individual counseling, locate services that help with practical needs such as home care or transportation, and guide people through the process of applying for Social Security disability or other forms of assistance.
Educational Workshops
https://www.cancercare.org/connect_workshops
Phone, online or as podcasts. One-hour workshops with leading experts in oncology. Registration required. Extensive library of podcasts include: coping with cancer; children; clinical trials; doctor/patient communication; end-of-life care; immunotherapy; pain; diagnostic technologies; nutrition.
PAW Program – Assistance with cats and dogs
https://www.cancercare.org/paw
Assistance and support with cats and dogs for people living with cancer in active treatment and their loved ones during the emotional, physical and financial challenges of cancer treatment.
Young Adult Survivorship: Fertility, Sexuality and Intimacy
Topics covered include but are not limited to fertility, sexuality and intimacy, desire, tips on vaginal dryness and premature menopause; sexual self-esteem; and pregnancy.
Employment and Career Workshops
https://www.cancercare.org/tagged/workplace_issues
Available over the telephone, online or on podcasts. Understand your legal rights and legal protections; workplace transitions; living and working with cancer.
Co-pay Assistance
http://portal.cancercarecopay.org/Funds-Available/Diagnoses
Assistance for pharmaceutical products to insured individuals who are covered by private insurance, employer-sponsored health plan or have Medicare Part D or Medicare Advantage. Check the portal for funds currently available for each type of type of cancer. Check back regularly for the copay funding status if availability for specific fund is currently closed.
Limited Financial Assistance
http://portal.cancercarecopay.org/Enroll-Now
Financial assistance for cancer-related costs such as co-pays for chemotherapy and cancer medications. Downloadable forms to enroll or reenroll in a program.
Directory of Assistance from Organizations Providing Financial and Practical Help
https://www.cancercare.org/helpinghand
Services are free
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CANCER.NET
American Society of Clinical Oncology (ASCO)
website: English and Spanish
https://www.facebook.com/CancerDotNet
https://twitter.com/cancerdotnet
(888) 651-3038
Information, Monday – Friday, 9:00 AM – 5:00 PM, ET. Other times leave a message, your call will be returned within twenty-four hours.
Cancer.net is a website that provides timely, comprehensive, oncologist-approved information and resources from the American Society of Clinical Oncology (ASCO) with support from the Conquer Cancer Foundation. With nearly 45,000 members who are leaders in advancing cancer care, the American Society of Clinical Oncology (ASCO) is the voice of the world’s cancer physicians.
Information Guides – Breast Cancer
https://www.cancer.net/cancer-types/breast-cancer
Guides with comprehensive, oncologist-approved information and illustrations.
Information Guides – Metastatic Breast Cancer
https://www.cancer.net/cancer-types/breast-cancer-metastatic
Guides with comprehensive, oncologist-approved information and illustrations.
Navigating Cancer
https://www.cancer.net/navigating-cancer-care ,
Learn about cancer, its causes, and its treatment. Topics include financial considerations; dating, sex and reproduction; coping with cancer; telling children; and resources for teens, young adults and older adults.
Navigating Cancer Videos
https://www.cancer.net/navigating-cancer-care/videos
Information covering various aspects of cancer. Topics include cancer basics; after treatment and survivorship; treatment, tests and procedures; and quality of life.
Choose an Oncologist
Oncologist Database
https://www.cancer.net/find-cancer-doctor
Database includes the names of physicians and other health professionals searchable by ZIP code.
Cancer Care and Costs
https://www.cancer.net/navigating-cancer-care/financial-considerations
Questions to ask your medical team and how to calculate your out-of-pocket costs.
PRE-ACT (Preparatory Education About Clinical Trials)
Education Clinical Trials
https://www.cancer.net/research-and-advocacy/clinical-trials/welcome-pre-act
Educational program designed to provide general information on clinical trials. Note: search results do not replace advice from your doctor.
Advanced Cancer Care Planning Guide
https://www.cancer.net/sites/cancer.net/files/advanced_cancer_care_planning.pdf
Comprehensive decision-making guide to help patients and families facing serious illness.
Topics include options for advanced cancer, making decisions about your care and finding support near the end of life.
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METASTATIC BREAST CANCER NETWORK
https://www.facebook.com/MetastaticBreastCancerNetwork/
(888) 500-0370
Information only
(844) 275-7427 (844-ASK-SHARE)
For helpline and peer-to-peer support you will be referred to SHARE Cancer Support
Metastatic Breast Cancer Organization has a comprehensive website with information and resources to support people dealing with metastatic breast cancer.
Videos
http://mbcn.org/what-is-metastatic-breast-cancer/
Videos explain MBC in simple to understand terms. Information includes MBC diagnosis; info for newly diagnosed; questions to ask your doctor; standard treatments for metastatic breast cancer; pain management and other side effects; clinical trials questions and answers and living with MBC.
Brochures
http://mbcn.org/free-brochures/
The information on the website is also available in brochure form, that can be downloaded or sent to you the mail.
Resources for One-on-one and Peer-to-peer Support
http://mbcn.org/peer-support-matches-telephone-hotline/
Be Your Own Advocate
http://mbcn.org/be-your-own-best-advocate/
Information on what questions to ask your doctor, second opinions and advice from patients living with MBC.
Clinical Trials
http://www.mbcn.org/clinical-trials-finder/
A clinical trial search engine to help people with metastatic breast cancer find trials. Note: search results do not replace advice from your doctor.
Services are free
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SHARE CANCER SUPPORT
https://www.sharecancersupport.org/
website: English, Spanish, and Japanese
helpline@sharecancersupport.org
https://www.sharecancersupport.org/metastatic-breast-cancer/helpline/ Contact form
https://www.facebook.com/SHARECancerSupport
(844) 275-7427 (844-ASK-SHARE)
Helpline, English and Spanish, Monday – Friday, 9:00 AM – 9:00 PM, Saturday – Sunday 9:00 AM – 5:00 PM, ET. Messages left are returned within twenty-four hours. Ten additional languages available.
(212) 382-2111
Call to register for dial-in/videoconference support groups
SHARE Cancer Support provides dedicated, experienced support for women facing breast, ovarian and uterine/endometrial cancer. The organization offers a helpline, support groups, webinars, seminars, and lectures for newly diagnosed and young women with breast cancer, as well as women with advanced or metastatic breast cancer and caregivers and LGBT patients. It also has a support network that connects women diagnosed with breast or ovarian cancer with others who share similar diagnoses and experiences.
Dial-in and/or Videoconference Support Groups
https://www.sharecancersupport.org/calendar/support-groups/
Patients are part of a group without having to leave the comfort of their home. Call the helpline number above to register.
Online Support Communities
https://healthunlocked.com/login/share1
SHARE partnered with HealthUnlocked to create three online support communities; breast cancer, metastatic breast cancer, ovarian cancer.
Online Educational Programs
https://www.sharecancersupport.org/video/
Extensive library of programs topics include but are to limited to, triple negative breast cancer, telehealth and breast cancer, stress reduction and exercise, to pain, new developments in treatment and cannabis for medical disorders and preparing for loss, age bias in cancer care; communities of color and participation in breast cancer research; sexuality after cancer; persistent and intermittent pain after breast cancer treatment; tumor dormancy.
Metastatic Trial Search
https://www.sharecancersupport.org/metastatic-breast-cancer/clinical-trial-matching-service/
Searchable by demographic, breast cancer type, and the area of the body with current evidence of disease. Note: search results do not replace advice from your doctor.
Services are free
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