INTERNATIONAL

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CLINICALTRIALS.GOV

https://clinicaltrials.gov/

(888) 346-3656

Information, United States National Library of Science

Monday – Friday, 8:30 AM – 5:00 PM, ET (except for federal holidays)

(800) 735-2258 

TDD access, Information, Monday – Friday, 8:30 AM – 5:00 PM, ET

ClinicalTrials.gov is a database of privately and publicly funded clinical trial studies conducted around the world. ClinicalTrials.gov is part of the National Institute of Health, U.S. National Library of Science ( https://www.nlm.nih.gov/ )

Clinical Trail Locator

https://clinicaltrials.gov/

Find studies taking place by condition and country. Study locations and specific contact information are listed to assist with enrollment. Each study record includes a summary of the study protocol, including the purpose, recruitment status, and eligibility criteria.

Read a Study

https://clinicaltrials.gov/ct2/help/how-read-study

Information on how to read a study:

Medical Encyclopedia

https://medlineplus.gov/

Information on drugs and supplements, genetics, medical tests. Articles and images for diseases, symptoms, tests and treatments through MedlinePlus.  

Service is free 

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DEATH CAFÉ

https://deathcafe.com/

website: Available in more than 100 languages

https://deathcafe.com/contact/

https://www.facebook.com/deathcafe

https://twitter.com/DeathCafe

Death Café is a group directed discussion of death with no agenda, objectives or themes. It is a discussion group rather than a grief support or counseling session. A gathering of individuals, often strangers, come together in restaurants, coffee shops, bookstores and living rooms to talk about death and living well over tea and cake. For the time being, COVID-19 has taken Death Café gatherings out of coffee shops and moved them to virtual gatherings. 

Upcoming Virtual Death Café’s by ZIP Code

https://deathcafe.com/deathcafes/

Worldwide Map for Virtual Death Cafes

https://deathcafe.com/map/

Free

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SAVE MY FERTILITY

The Oncofertility Consortium — Northwestern University

http://www.savemyfertility.org/

https://www.facebook.com/oncofertilityconsortium/

https://twitter.com/oncofertility

(866)708-3378 

Helpline, Monday – Friday, 8:00 AM to 5:00 PM, CT. Voicemails will be returned typically in 24 to 48 hours. 

Save My Fertility is an authoritative resource for adult cancer patients and the parents of children with cancer who want to learn more about preserving their fertility before and during cancer treatment and protecting their hormonal health after treatment. SaveMyFertility.org also provides information and guidance to oncologists, endocrinologists, and other health care providers concerned with the reproductive health of cancer patients and survivors. 

Patient Navigator

http://preservefertility.northwestern.edu/

Tutorials on topics that include options for family building; egg and embryo banking; ovarian tissue cryopreservation; normal female fertility; normal male fertility. 

Downloadable Pocket Guides, English, Spanish, Chinese and Thai 

https://www.savemyfertility.org/pocket-guides/patients

Understanding fertility preservation options available. The brochures are available for download at the end of each page.

Downloadable Pocket Guides, Men with Cancer, English, Spanish, Chinese and Thai

https://www.savemyfertility.org/pocket-guides/patients/fertility-preservation-men-diagnosed-cancer

Understanding fertility preservation options available. The brochures are available for download at the end of each page. 

Global Map of Fertility Preservation Centers

http://oncofertility.northwestern.edu/find-a-clinic-or-center

Clinic/center finder has information to find fertility preservation centers around the world. Searchable by country and services.

Free

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AWESOME BREASTFORMS

https://awesomebreastforms.org/

website: Available in more than 100 languages

https://www.facebook.com/Awesome-Breastforms-Orders-1601722360097846/?fref=ts#

Awesome Breastforms are prosthetic breast forms handmade with 100% cotton fiber yarn. They are created by a group of women who have come together for the single purpose of crocheting and knitting handmade prosthetic breast forms for women who have had breast surgery, including mastectomy, lumpectomy, explant surgery and women with developmental conditions. Washable and easy to care for. 

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DANA FARBER CANCER INSTITUTE 

in Boston 

https://www.dana-farber.org/

website: More than 100 languages

https://www.facebook.com/danafarbercancerinstitute

https://twitter.com/danafarber

(617) 632-3000 

General information English

(617) 632-3673 

Spanish 

(617) 632-6366 

All other languages

(800) 941-9309 

Patients located in the US, Grand Rounds care team, to initiate the online second opinion process by phone, Monday – Friday, 9:00 AM – 9:00 PM, ET

+1-775- 440-2559 

Patients located outside the US, Grand Rounds care team, to initiate the online second option process by phone, Monday – Friday, 9:00 AM – 9:00 PM, ET

Dana Farber Cancer Institute is a comprehensive cancer treatment and research center in Boston, Massachusetts. It is a principal teaching affiliate of Harvard Medical School, and a federally designated Center for AIDS Research. The institute offers adult cancer patients from around the country, and around the world, a remote second opinion through its Second Opinion Program. The program is coordinated through Grand Rounds, a digital health-care company that connects patients with local and remote specialty care. 

Remote Second Opinion

https://www.grandrounds.com/dana-farber

Typically, it takes five-to seven business days after your medical records have been received to get your written online second opinion. Website offers a sample consultation to show you what to expect in a report. Check with your medical insurance for coverage. Consult website for additional information and details. Fees apply

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LOOK GOOD FEEL BETTER

https://lookgoodfeelbetter.org/ 

website: English and Spanish

https://www.facebook.com/lookgoodfeelbetter

https://twitter.com/LGFB

(800) 395-5665 

Information, voice mail

Look Good Feel Better is a non-medical, brand-neutral public service program that teaches beauty techniques to people with cancer to help them manage the appearance-related side effects of cancer treatment. The program includes lessons on skin and nail care, cosmetics, wigs and turbans, accessories and styling. 

At Home Beauty Guide

https://lookgoodfeelbetter.org/programs/beauty-guide/ 

Has information and tips on makeup, new hair looks, nail care and styling. 

Virtual Workshops

https://lookgoodfeelbetter.org/virtual-workshops/ 

Look Good Feel Better Live! Instructions and tips for dealing with appearance-related side effects of cancer treatment during one-hour, online workshops. Beauty professional volunteers guide a group of participants in skin care and makeup application, the use of wigs and other head coverings, or body image and styling to help manage appearance concerns. Participants can ask questions of the instructor, interact with other participants.

Global Programs

https://lookgoodfeelbetter.org/programs/around-the-world/#global-programs

The Look Good Feel Better Foundation oversees a global network of 26 licensed affiliates that deliver Look Good Feel Better support programs in countries across the globe.

Programs are free

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AMERICAN ASSOCIATION OF SEXUALITY EDUCATORS, COUNSELORS AND THERAPISTS

https://www.aasect.org/

https://www.facebook.com/AASECT

https://twitter.com/TheAASECT

American Association of Sexuality Educators, Counselors and Therapists (AASECT) is professional organization devoted to the promotion of sexual health by the development and advancement of the fields of sexual therapy, counseling, and education. 

Directory of Therapists, Councilors or Educators

https://www.aasect.org/referral-directory

A list of sexuality educators, sexuality counselors or sex therapists in the US and around the globe. AASECT is a membership organization for medical and health-care professionals, but anyone can access the map and list of professionals. 

Directory is Free

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