• CANCER INFORMATION
All the resources provided in the resource guide have information on cancer. The organizations below offer clinical information and explanations on types, diagnosis, treatment and studies of the disease. Note: search results do not replace advice from your doctor.
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AMERICAN CANCER SOCIETY
website: English and twelve additional languages
https://www.facebook.com/AmericanCancerSociety
https://twitter.com/americancancer
(800) 227-2345
Helpline/information, English 24/7, Live Spanish help, Monday – Friday 7:00 AM –
7:00 PM, CT, After hours – third party translation.
Third party translation service for other languages.
Live chat available, English and Spanish, Monday – Friday, 7:00 AM – 6:30 PM, CT
The American Cancer Society (ACS) is a nationwide, community-based voluntary health organization dedicated to eliminating cancer as a major health problem. It provides information, education, resources, and support for all types of cancer including alternative approaches, clinical trials, and tips for living with cancer.
Understand and Manage Your Diagnosis
https://www.cancer.org/cancer/breast-cancer.html
Information on managing, understanding, and coping cancer.
Treatment
https://www.cancer.org/treatment.html
Side effects; finding and paying for treatment; understanding financial and legal matters; helping children when a family member has cancer; staying healthy during and after treatments; managing a diagnosis during/after a natural disaster.
Coronavirus, COVID-19, and Cancer
https://www.cancer.org/about-us/what-we-do/coronavirus-covid-19-and-cancer.html
Routine medical care during the pandemic, preventing and managing infections. Tips for managing stress and emotions in coronavirus; ways to stay healthy while stuck at home and steps for cancer caregiving during a pandemic; questions to ask your health care team.
Videos on Clinical Trials
Information on what is involved in a trial and how to understand if a trial is right for you. Note: search results do not replace advice from your doctor.
About Clinical Trials
Note: search results do not replace advice from your doctor.
Personal Health Manager
Information, tools and worksheets to stay organized and prepared for talking with your doctor.
Sex and the Woman with Cancer
Sex and the female body; surgery and sex; chemo and hormone treatment and sex; cancer, sex and the single woman.
Talking to Children
Steps, advice, and resources on how to tell children when a family member has cancer.
Caregiver Information and Support
https://www.cancer.org/treatment/caregivers.html
A video series and downloadable guide for understanding a caregiver’s role; patient nutrition; coping skills; how to deal with money issues; living wills and facing end of life, as well as, how to assist with the everyday needs of their loved one and self-care techniques to improve their own quality of life.
Healthy Eating, Active Living
https://www.cancer.org/healthy/eat-healthy-get-active/healthy-eating-active-living-videos.html
2 to 4-minute videos: Healthy choices can impact your risk; the truth behind cancer myths, how to incorporate healthy behaviors into your busy life.
Services are free
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BREASTCANCER.ORG
website: English and Spanish
https://www.facebook.com/breastcancerorg/
https://twitter.com/Breastcancerorg
BreastCancer.org is a nonprofit organization that has information, resources, and education on breast cancer. It has extensive library of articles, slideshows, blogs, podcasts and videos.
Videos with Doctors and Survivors
https://www.breastcancer.org/treatment/surgery/reconstruction/videos
Topics include but are not limited to: understanding breast cancer; breast reconstruction; treatment; breast cancer and your job; sex and intimacy; hormonal therapy; lymphedema; pain management, mastectomy and reconstruction.
Podcasts
http://www.breastcancer.org/community/podcasts
Topics include but are not limited to recurrence; COVID-19 and breast cancer; breast cancer risk and race; inflammatory breast cancer; immunotherapy; mastectomy and reconstruction; sexual side effects of cancer treatment.
Talking to Young and Older Children
https://www.breastcancer.org/tips/telling_family/older_kids
Seven-step guideline with tips on talking to young and older children when a family member has cancer
Free
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CANCER.NET
American Society of Clinical Oncology (ASCO)
website: English and Spanish
https://www.facebook.com/CancerDotNet
https://twitter.com/cancerdotnet
(888) 651-3038
Information, Monday – Friday, 9:00 AM – 5:00 PM, ET. Other times leave a message, your call will be returned within twenty-four hours.
Cancer.net is a website that provides timely, comprehensive, oncologist-approved information and resources from the American Society of Clinical Oncology (ASCO) with support from the Conquer Cancer Foundation. With nearly 45,000 members who are leaders in advancing cancer care, the American Society of Clinical Oncology (ASCO) is the voice of the world’s cancer physicians.
Information Guides – Breast Cancer
https://www.cancer.net/cancer-types/breast-cancer
Guides with comprehensive, oncologist-approved information and illustrations.
Information Guides – Metastatic Breast Cancer
https://www.cancer.net/cancer-types/breast-cancer-metastatic
Guides with comprehensive, oncologist-approved information and illustrations.
Navigating Cancer
https://www.cancer.net/navigating-cancer-care
Learn about cancer, its causes, and its treatment. Topics include financial considerations; dating, sex and reproduction; coping with cancer; telling children; and resources for teens, young adults and older adults.
Navigating Cancer Videos
https://www.cancer.net/navigating-cancer-care/videos
Information covering various aspects of cancer. Topics include cancer basics; after treatment and survivorship; treatment, tests and procedures; and quality of life.
Choose an Oncologist
Information and guidance on choosing a cancer doctor.
Oncologist Database
https://www.cancer.net/find-cancer-doctor
Database includes the names of physicians and other health professionals searchable by ZIP code.
Cancer Care and Costs
https://www.cancer.net/navigating-cancer-care/financial-considerations
Questions to ask your medical team and how to calculate your out-of-pocket costs.
PRE-ACT (Preparatory Education About Clinical Trials)
https://www.cancer.net/research-and-advocacy/clinical-trials/welcome-pre-act
Educational program designed to provide general information on clinical trials.
Clinical trial video library
https://www.cancer.net/research-and-advocacy/clinical-trials
40 second to 2-minute recordings with information. Note: search results do not replace advice from your doctor.
Advanced Cancer Care Planning Guide
https://www.cancer.net/sites/cancer.net/files/advanced_cancer_care_planning.pdf
Comprehensive decision-making guide to help patients and families facing serious illness.
Topics include options for advanced cancer, making decisions about your care and finding support near the end of life.
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CENTERS FOR DISEASE CONTROL AND PREVENTION (CDC)
website: Seventeen languages
https://wwwn.cdc.gov/dcs/ContactUs/Form Contact form
(800) 232-4636
Information, English and Spanish, Monday – Friday, 8:00 AM – 8:00 PM, ET
The Centers for Disease Control and Prevention (CDC) is a federal agency that conducts and supports health promotion, prevention and preparedness activities in the United States, with the goal of improving overall public health.
National Breast and Cervical Cancer Early Detection Program (NBCCEDP) https://www.cdc.gov/cancer/nbccedp/
Provides breast and cervical cancer screenings and diagnostic services to low-income, uninsured, and underinsured women across the United States.
Find a Screening Program Near You
https://www.cdc.gov/cancer/nbccedp/screenings.htm
Interactive map to locate free and low-cost breast and cervical cancer screenings by state, tribe, or territory.
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DR. SUSAN LOVE RESEARCH FOUNDATION
https://www.drsusanloveresearch.org/
website: English and Spanish
https://drsusanloveresearch.org/contact/
https://www.facebook.com/DrSusanLoveFoundation
https://twitter.com/drloveresearch
(310) 828-0060
Information, messages left will be returned ASAP.
Dr. Susan Love is a surgeon, a prominent advocate of preventive breast cancer research, an author and regarded as one of the most respected women’s health specialists in the United States. She helped establish the National Breast Cancer Coalition. The Dr. Susan Love Research Foundation has a comprehensive website with information on breast cancer basics, newly diagnosed, screening and testing, living with breast cancer, metastatic stage IV breast cancer, menopause and women’s health and treatment options.
ImPatient Science® Video Series – English and Spanish
https://www.drsusanloveresearch.org/impatient-science
Two to five-minute videos on the science of breast cancer. Topics include the science of breast cancer; metastatic breast cancer; breast cancer sub-types; understanding immunology; clinical research; collateral damage.
Webinars
https://drsusanloveresearch.org/newsroom/webinars/
Researchers who collaborated with the Army of Women® for the recruitment of their studies present and discuss results and conclusions with both study participants and other interested Army of Women members.
Free
Dr. Susan Love Research Foundation’s Army of Women®
https://drsusanloveresearch.org/love-research-army/
An initiative, connecting women and men of all ages, ethnicities, and locations to researchers committed to solving important breast cancer questions. The goal is to forge partnerships between their members and the scientific community and teach members about the clinical research process and connect them with innovative research studies: You can sign up to receive periodic emails with information about breast cancer research studies that are recruiting volunteers. It lists clinical studies and projects that are currently open and enrolling volunteers.
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LIVING BEYOND BREAST CANCER
website: English and Spanish
https://www.facebook.com/livingbeyondbreastcancer
https://twitter.com/LivingBeyondBC
(888) 753-5222
Helpline, English Monday – Friday, 9:00 AM – 9:00 PM, ET
(844) 275-7427
Helpline, Spanish Monday – Friday, 9:00 AM – 9:00 PM, ET
Living Beyond Breast Cancer (LBBC) is an organization that provides information, support and educational programs for people with all stages of breast cancer.
Learn About Cancer
A library of guides to understanding cancer; educational programs and webinars; cancer blog of inspirational and empowering stories; tips for getting good support. Categories of information to further focus your search: recently diagnosed; in treatment; living with a history of breast cancer; living with metastatic breast cancer; young woman.
Let’s Talk About It Video Series
The videos combine the perspectives of young women affected by breast cancer and their health-care providers. Topics include early stage and metastatic breast cancer.
Free
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METASTATIC BREAST CANCER NETWORK
https://www.facebook.com/MetastaticBreastCancerNetwork/
(888) 500-0370
Information only
(844) 275-7427 (844-ASK-SHARE)
For helpline and peer-to-peer support you will be referred to SHARE Cancer Support
Metastatic Breast Cancer Organization has a comprehensive website with information and resources to support people dealing with metastatic breast cancer.
Videos
http://mbcn.org/what-is-metastatic-breast-cancer/
Videos explain MBC in simple to understand terms. Information includes MBC diagnosis; info for newly diagnosed; questions to ask your doctor; standard treatments for metastatic breast cancer; pain management and other side effects; clinical trials questions and answers and living with MBC.
Brochures
http://mbcn.org/free-brochures/
The information on the website is also available in brochure form, that can be downloaded or sent to you the mail.
Resources for One-on-one and Peer-to-peer Support
http://mbcn.org/peer-support-matches-telephone-hotline/
Be Your Own Advocate
http://mbcn.org/be-your-own-best-advocate/
Information on what questions to ask your doctor, second opinions and advice from patients living with MBC.
Clinical Trials
http://www.mbcn.org/clinical-trials-finder/
A clinical trial search engine to help people with metastatic breast cancer find trials. Note: search results do not replace advice from your doctor.
Services are free
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NATIONAL CANCER INSTITUTE
US Department of Health and Human Services
website: English and Spanish
https://www.cancer.gov/contact/email-us
https://www.facebook.com/cancer.gov
(800) 422-6237
Information, English and Spanish, Monday – Friday, 9:00 AM – 9:00 PM, ET
LiveHelp chat line, English and Spanish, Monday – Friday, 9:00 AM – 9:00 PM, ET
English chat line: https://livehelp.cancer.gov/app/chat/chat_launch
Spanish chat line: http://LiveHelp-es.cancer.gov
The National Cancer Institute (NCI) provides a comprehensive website with information, education, resources, advocacy and support for all types and stages of cancer.
About Cancer
https://www.cancer.gov/about-cancer
Information on types of cancer treatment; clinical trials; cancer drugs; complementary and alternative treatment; causes and prevention; advanced cancer; coping; and managing cancer care.
Treatment Information
https://www.cancer.gov/types/breast/patient/breast-treatment-pdq
Self-image, Sex and Dating
https://www.cancer.gov/about-cancer/coping/self-image#dating
Information on self-image, sex and dating during or after cancer.
Pregnancy and Cancer
https://www.cancer.gov/types/breast/patient/pregnancy-breast-treatment-pdq#_94 ,
Dictionary of Cancer
https://www.cancer.gov/publications/dictionaries
Biomedical terms defined in non-technical language. Contains definitions and synonyms for drugs/agents used to treat patients with cancer or conditions related to cancer. Each drug entry includes links to check for clinical trials listed in NCI's List of Cancer Clinical Trials.
Patient Education Publications
https://www.cancer.gov/publications
Free booklets with information on clinical trials; screening; survivorship; support; types of cancer; treatment and side effects and more.
Steps to Find a Clinical Trial
https://www.cancer.gov/about-cancer/treatment/clinical-trials/search/trial-guide
Note: search results do not replace advice from your doctor.
Clinical Trials
https://www.cancer.gov/about-cancer/treatment/clinical-trials/search
Find a clinical trial. Note: search results do not replace advice from your doctor.
Services are free
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